I sort of launched into the middle of this blog as if it was obvious why I am starting a blog now. There’s a bit about that on the “About” page. I’ll write more soon.
For the month of May, the blog is a place to capture my streak of writing and sharing about pediatric stroke to spread awareness and to raise money for Children’s Hemiplegia and Stroke Association, chasa.org.
Please visit my fundraising page for more information about my streak and for an easy way to support an organization that has helped our family.
On Sunday, Mia (almost 4) and her friend Ellie (almost 5) were playing while Zoe and Ellie’s big brother were in Hebrew School. I carry around a bag of toys for such occasions that includes crayons and coloring books and also developmental toys that require two hands, like the lacing animals featured in this video clip below.
Notice that both girls, Ellie (left) and Mia (right) are initially working on lacing. Ellie switches hands repeatedly, handing the lace from one hand to the other. Mia is holding her string in her left hand. She’s left handed. Mia’s stroke was in the left side of her brain, impacting the right side of her body. She started to show left-hand dominance when reaching for toys as an infant. Typically, handedness does not develop until much later.
Mia then gets interested in her buckle on her shoe. It’s the first day she is wearing these sandals, discovered in the switchover to warm-weather clothes. She continues to hold her animal in her right hand while she tries to manipulate the buckle with her left hand only. When Ellie shows the long string, Mia spontaneously points with her right hand and arm. And, after that, she does bring her right hand to help manipulate the buckle.
This is just a tiny vignette of one minute from one of Mia’s days but I notice stuff like this all the time. I think of it as a sort of constant state of awareness about how much Mia is spontaneously bringing her whole self into action for any given task. I try to create conditions that invite her to do this as often as possible without it being part of her conscious awareness. Fundamentally two-handed toys help. Bike riding definitely helps. And, tricky aspects of clothing and shoes like zippers, snaps, buttons, and buckles really are easier to make work if you can bring two hands to the task.
We went to the playground this evening and Mia proudly showed me her new skills on the monkey bars. She can reach one hand to the first bar and the other hand the second bar. With some help she can reach repeatedly. She has callouses on her hands from practicing at preschool. This too is a highly motivating two-handed activity that I fully expect her to master in time.
May is pediatric stroke awareness month and I am sharing tidbits learned while parenting Mia, who had a stroke around the time of her birth, almost 4 years ago.
In the fall of 2009, when Mia was 3 months old, both girls started together at the same preschool/daycare. It’s a mile from our house and I committed to walk them there as many days as weather and schedules allowed. We walked 253 times over those three years. This slideshow captures a sampling of our walks.
If you view it while thinking about Mia’s development, there’s a lot to see. She learns to reach, point and eat with righty, she wears her constraint splint (first hot pink later green on lefty), she learns to sit, walk, ride a balance bike. You can also see the developing relationship between the girls. And, I treated this as hardiness training so we walked in all seasons, with appropriate gear, and as a result my girls are quite comfortable and capable to be outside all year long. Mia’s determination is a huge asset as she has worked hard to gain skills and functioning. Zoe is a fantastic motivator to Mia as she wants to keep up and do everything that she sees Zoe doing.
May is pediatric stroke awareness month and I am sharing tidbits learned while parenting Mia, who had a stroke around the time of her birth, almost 4 years ago.
Mia had a Feldenkrais lesson with Matty Wilkinson this morning. Note how happy and playful the lesson is. Play promotes learning.
The Feldenkrais method has been the most effective of all approaches we’ve used to support Mia’s development. Mia has had lessons with several practitioners since she was an infant.
May is pediatric stroke awareness month. Mia had a stroke around the time of her birth. I’m attempting to post daily throughout the month to share tidbits I’ve learned from parenting a stroke survivor.