Author Archives: mara

Mount Monroe, Mount Washington – July 10-11, 2016

Sunday, July 10, 2016

On Sunday, July 10, 2016, Zoe, Mia, and I arrived at the trailhead at the Mount Washington Cog Railway Base Station parking lot just after 10 am, and we were on the trail at 11 am. We were not in a hurry as we understood that the forecast was supposed to be improving throughout the day on Sunday and definitely be better on Monday. We headed up the Ammonousuc Ravine Trail. It was about 50 F, not raining as we started.

Note: Click on any of the pictures to see them in a larger size.

IMG_1760

At about 0.3 miles, our trail merged with the one coming from the U.S. Forest Service parking lot. We continued to climb. We took lots of breaks. Roots and rocks are relatively easy going, and there was a lovely sound with the stream all along the trail, with great waterfall views.

IMG_1764
IMG_1769
DSC02767
DSC02771
IMG_1770
IMG_1776
IMG_1777
IMG_1784

The trail got significantly steeper just after Gem Pool, and it was raining too. At that point, we had to put our hiking poles away to use our hands and feet to climb some of the slippery ledge rocks.

IMG_1788
IMG_1798
IMG_1801
IMG_1802

There were a few others climbing up or down the Ammonousuc that day, though not very many, most likely because it was not a nice day.

One guy made a big impression on Zoe as he ignored her warning not to step over a rock crevice and he bounded across it.

The girls were faster than me on the big rock scrambles. Mia had led most of the way on Sunday, and they worked together to coach each other on foot and hand holds and also to coach me.

The girls made it to the top of the final ledge section and yelled down that they could see the hut!

IMG_1805

We arrived at the Lakes of the Clouds Hut at about 4 pm, so the 2.4 miles and 2300 vertical feet took us about 5 hours.

We were happy to go inside, hang up all of our wet gear, and find our bunks. There was a super eager ten year old girl who was helping the hut croo as we checked in. As it turned out, she was part of a party of ten sharing our fifteen bed bunk room. Her grandfather takes his clan to a hut every year.

The girls had hot chocolate, while I had tea, and we shared some cornbread and some kind of baked bar made by the croo.

The girls made friends, ran around in socks or bare feet as we hadn’t brought any shoes other than our hiking boots. We found our three bunks, built into the wall, all three stacked one above the other. I was on the bottom, Mia in the middle, Zoe on top.

Dinner was served family style at 6 pm, a four course meal: black bean soup, subalpine salad, stuffed shells, broccoli, and lemon poppyseed cake. The hut croo entertained and served us. We sat at a table with the family of ten.

Our final two bunkmates arrived just before dinner, a mother and her fourteen year old daughter.

Zoe found it helpful that we had time to get to know people before we had to go to sleep, so for her it was like sleeping in a room of friends, instead of strangers.

Quiet hours are 9:30 pm to 6:30 am. Mia was asleep well before quiet hours, Zoe just after. I took advantage of the free earplugs offered, and we all got a decent sleep.

Monday, July 11, 2016

Our original plan had been to climb Mt. Monroe on Sunday afternoon or evening, but the weather didn’t cooperate for us or anyone else. So, along with some others, we decided to do it before breakfast. It’s only 0.3 mile and 360 vertical feet from Lakes of the Clouds Hut up to the summit of Mt. Monroe.

DSC02786

Mia putting on gloves before climbing Monroe

 

DSC02787

Girls on the way up Monroe.

 

We made it up and down in about 45 minutes. Some kind folks took a couple sets of pictures of us. It was misty and wet on the climb. We saw a rainbow, and got some views. It was also very windy and quite cold. We all wore hats and gloves and rain pants and jackets.

DSC02791
DSC02795

DSC02802

View of Washington from Monroe

 

DSC02806

Mia on way down from Monroe

Breakfast was served family style: oatmeal, eggs, bacon, pancakes, tea, coffee, hot chocolate, juice.

The croo put on a Cinderella skit as they taught us how to fold up the wool blankets on our bunks. My girls and I had brought sleeping bag liners which worked well on the bunks with the provided pillows and blankets.

We loaded up our backpacks, and headed outside to start our hike at about 8:30 am. Some others took a picture of us in front of the hut.

DSC02815

It’s about 1.5 miles from the hut to the summit of Mt. Washington, and 1270 vertical feet. It was clear and sunny, though windy still. The girls started out slowly and we had to adjust clothing, take several breaks, and sort out whether Mia or Zoe was going to lead. Most of the other guests who had stayed at the hut passed us on their way up Mt. Washington, and that was definitely discouraging to the girls. Around this time, Mia also realized that she had been the youngest person in the hut that night. There were some other nine and ten year olds close in age to Zoe, but nobody Mia’s age. Zoe told me that she’d like to have a Feelings Class that took field trips then spent time thinking about and writing about the feelings of other classmates. I was in awe as she invented this concept in her mind, clearly recognizing her own spread of feelings and those of Mia and me as we confronted the elements and our own limitations.

DSC02823
DSC02835
DSC02846
DSC02861

As we were approaching the summit, a student intern with the U.S. Forest Service approached us to do a survey about use of the Crawford Path. The survey was asking about our experience in terms of our sense of whether it was too crowded on that day and what might make it too crowded. We had to estimate number of hikers per hour, and look at some pictures to see if that seemed too crowded. It was supposed to take us five minutes, but took more like fifteen.

DSC02867

We finally made it to the summit, about 3 hours after we had left the hut. We asked some folks to take a summit picture of us. There were a lot of people up there, most of them had come up by Cog Rail or in cars. There’s a full visitor center where we were happy to rest and eat hot food. The girls enjoyed pizza. I had chili. We saw our friends, the family of ten. We charged my cell phone which had run out of power on Sunday.

And, we conferred. I wasn’t at all sure we all had the energy for the descent we had planned. Mia seemed really tired and said she just wanted to take a nap. I asked her at one point what she wanted to do and she said she was okay to take a shuttle down. My right knee hurt. Zoe kept going back and forth. She asked what would happen if we got halfway down and one of us just couldn’t go anymore. I explained that we had enough food and warm clothes and gear to wait it out until we could go again. So, I posed it to Zoe that I thought we might need to take a shuttle down. She was very disappointed. Mia saw her upset and by then the hot food had reenergized her so she said she could walk it. I checked in again with each of them. Yes, they wanted to hike down, the Gulfside and Jewell Trails as planned, another 4.4 miles.

We all changed out of our long underwear and rain pants and put on hiking pants as it was dry and getting warmer, and would be getting even warmer as we descended. We filled our water bottles and Camelbaks, and set out just after 1 pm.

Zoe led most of the descent. We first had to get off the summit of Mt. Washington and down to the Gulfside Trail. Then, we headed along the Gulfside Trail, crossing the railroad tracks of the Cog Railway, and seeing some trains puttering up and down the mountain. The wind was bothering Zoe, and she decided she really wanted to be below treeline. I was especially enjoying the views and took a number of pictures. We all thought it was super cool when we spotted the Mount Washington Hotel and the Cog Railway Base Station, though the station looked really far away which was a bit discouraging.

IMG_1807
IMG_1813
DSC02878
IMG_1815

IMG_1816 
DSC02881

DSC02884

DSC02888

IMG_1817 
DSC02894

White patch is Mount Washington Hotel

 

DSC02912

We continued on slowly and took a lot of breaks. There were definitely a lot more hikers out on Monday than Sunday. We passed a couple of the croo from the prior night. They had walked over to Madison Spring Hut and were on their way back to greet that night’s guests. They were practically running.

It was interesting to see how when the trail required us to climb before joining up with the Jewell Trail, the girls thought that we were going the wrong way. We weren’t, it’s just not all down, even as we were on the way down overall. Zoe was trying to see the way that the trail went as there were two sets of cairns and so I studied the map and showed her where I thought we needed to go. It was confusing to her as it didn’t seem like a direct way to the Cog Railway Base Station which we could see.

We all used our hiking poles on the descent and it definitely was helpful to maintain balance and to help me cushion some of the pounding for my knees. Zoe started an estimation problem. “If a quarter is about an inch in diameter and there are twelve inches in a foot,… How many feet in a mile? How many miles are we walking? How much money would that be if we lined up quarters all along the path?” I loved her questions but I had to tell her that her questions were beyond my mental math capacity in that moment. I was tired.

Mia started to talk to herself in the same sing-songy monologue she often uses in the bath or when she’s playing by herself. She was processing everything she’d seen, so there were stories in the snippets I heard about the hut stay, about the various phases of the hut. She was happy and just kept going.

We finally started to go down the Jewell Trail. A large group of fourteen and fifteen year old girls and their chaperones were also descending. We played leap frog with them for a while. Each time they took a break, we passed them, then we’d take a break, and they’d pass us.

The girls explained to me that it wasn’t like you immediately went from being above treeline to below treeline. It happened gradually. And so it did. The scrubby pine started to emerge after we’d been careful for hours of stepping on the fragile alpine flowers. Eventually, the trees were as tall as Mia, and then much taller than all of us. One of the chaperones of the group of girls took this picture of us, happy to be back in the trees!

IMG_1819

Mia got really tired and started to whine. Zoe didn’t want to listen so she went a bit too far ahead. I had to corral everyone together, especially after Mia and I each slipped and I cautioned Zoe that we needed to stay together. I checked in with Mia who wanted to keep going despite some tears. We got low enough that we each had to take off our rain jacket. I stuffed each of our rain jackets into our respective backpacks. We descended further and the bugs came out. They were super annoying. Nobody wanted to stop to put on bug repellant. I eventually did because I couldn’t stand it, and I swabbed some on Mia’s neck and forehead too. We were all yelling at the bugs and at the missing trail branch that was supposed to be on the left any time now. Actually, the girls were confused as to how the trail could branch to the left as to the left was the slope of a hill going up. they didn’t want to go up.

We crossed a stream. I thought we were getting close. I went to look for my map which had been in the pocket of my red rain jacket. Uh oh. My red rain jacket was missing from the outer pouch of my pack where I had stuffed it. The kids were in good spirits at that point. I asked them to rest and eat another snack. I thought I might have snagged the jacket on a tree branch that I had to crawl under. I left them and my pack, took note of the time, determined to only go 10-15 minutes up trail to see if I could find my jacket. Not seven minutes later, I was beyond thrilled to see a family carrying my jacket. They were Austrian, had a couple of older kids, and had traveled in one day the same route that we’d done in two days. They said they’d found my jacket quite a way up the mountain. We walked out the final half mile with them. They even helped us with the last stream crossing which was a bit tricky. And, I shared some tips as they were headed to the Boston area for a few days after their White Mountain adventures.

We arrived at our car at 7 pm, took off our boots, stopped to get gas for the car and salt and vinegar potato chips for the girls, and drove the nearly three hours home without further stops. The girls were amped up and super goofy the first hour of the drive, but then slept the duration. Zoe claims she only slept twenty minutes. I know better. I tried to turn on my music. She awoke and asked me to turn it off. I kept it off as I wanted her to sleep.

Total distance hiked on Monday: ~6.5 miles

Mia Changita

Changita means “little monkey” in Spanish. We are lucky to have Latina au pairs caring for my girls so here is “Mia Changita” doing her monkey thing!

Mia continues to amaze me, now at age six. This video is from a few weeks ago. Her inventiveness, strength, experimentation, and courage are all palpable. And, it’s really hard to tell that she had a stroke as she does most everything with both arms and hands and both legs and feet.

If you want to have some appreciation for this beyond imagining the abdominal strength needed to do this, check out my earlier post about Monkey Mia from when Mia first mastered the monkey bars at age four, or this one on neuroplasticity, or Mia learning to do skin the cat, and why Mia is an outlier as explained by Karen Pape, MD.

Tonight, Mia found the splint we used for constraint therapy when she was a toddler and until she was nearly 3 years old. She put it on even though it’s too small, and said she was going to give herself a “challenge” and give “righty” practice doing everything and that’s how she got ready for bed, using only her hand that doesn’t work quite as well as the other one for fine motor tasks. I asked her if she wants us to get a new splint that fits her better so she can do this “challenge” more often. She said yes. She asked me the name of the orthotist that we need to go see. I told her he’s Dr. Wall and he’s very funny. His name cracked her up.

1067 Days of Reading Aloud

For the third day of school, third grade, Zoe gets to bring in a small paper bag with three special things. She chose, “Little House in the Big Woods,” a small elephant carving from India, and our reading streak log book. Two of her three precious items are connected to the shared experience of reading aloud. “Little House in the Big Woods” is the first book of the first series that we’ve read multiple times. We’ve been reading aloud since she was a baby, and reading chapter books since she was four. We’ve been keeping track of our daily reading streak for nearly three years, tallying more than one thousand days of consecutive read aloud with only a few guest readers at times when I had to be away overnight. Last night and this morning, I captured to a digital log the last several months of reading just in case our little notebook log doesn’t make its way all the way to school and back. Though, Zoe assures me it will, after all she took it for a similar show-and-tell event in first grade too.

Since my last major update about our reading streak at the 800 day mark, we’ve read several more series or parts of series. “Sarah, Plain and Tall” and the four books that follow were hits as were the “All of a Kind Family” books. For those, Zoe was really bothered that the books were not in chronological order and so she wanted me to read them in the order that made the most sense to her. The fourth Penderwicks book came out, we heard the author speak at the Brookline Public Library the day before Zoe was due to make a presentation and perform a puppet show in school all about the author, Jeanne Birdsall. Zoe read “The Penderwicks in Spring” in three days, impatiently but politely informing me that my pace of one or two chapters per day would not cut it. Later, she let me read it aloud. That marked a turning point in our reading streak. Zoe’s reading level has caught up to much of what I read.

I continue to choose books with lots of words, like “Little Women” and the two that follow it, and we’re into the second book of “Anne of Green Gables” now, intent on continuing. Some of these books are “too many words” for Mia who protests by doing headstands during reading time, or being even more provocative when she really has had enough. To  keep her in the mix, we also include books that hold her interest. The Doctor Dolittle books, “Dear Mr. Henshaw” and “Shiloh” have been recent hits with Mia, and the next Shiloh book is on deck after we finish “The Borrowers.” Interestingly, even when it seems like Mia isn’t exactly listening, she is. Out of the blue, she’ll make a comment about one of the characters that is spot on in relevance. The characters of these books become like members of our family, used in conversation to explain how someone might be as evil as Dexter Dupree, for example.

All summer, I read a chapter from each of their chapter books each morning and night. As school begins, we’re struggling to shift to a more workable morning routine which means I may need to start using the timer in the morning to limit our read aloud time. Protests mean that I’m thinking about alternatives, like doing some of my other morning jobs before the girls wake up so we can still fit in the two chapters. Tough choices for a beloved shared time we spend together morning and night.

While we listened to “Mary Poppins” and “Stuart Little” on our trip to Ithaca and the Adirondacks, we didn’t listen to as many audiobooks as in past summers. One reason is that Zoe can satisfy her thirst for words by reading chapter books independently. There were several books that she devoured in one or two days of sustained focus.

Our reading streak continues, and while we started with a modest goal of making it to 100 consecutive days of reading aloud, we just hit 1067 and keep counting.  As always, we welcome suggestions on titles, authors, series, and all genres that might interest two girls, ages 6 and 8.

Related Posts:

Pediatric Stroke Clinic – 6 Years Old

IMG_8437.JPG

Today was our fifth visit to the Pediatric Stroke Clinic at MGH. The first was when Mia was 2 months old, then 14 months, 26 months, 4 years and 2 months, and today at 6 years and 2 months. Every one of these appointments has been in mid August. The stroke clinic happens once a month, and we’re on an August schedule, at first once a year until Mia turned two, now once every two years. It’s a form of time travel for me, revisiting this place, with an older and more capable child each time, answering the same questions and some new ones, sharing information, seeing if I’ll learn anything useful.

The heat, the drive, the traffic, parking garage, finding the bathroom, remembering doing it all with a stroller, getting a snack at the cafeteria, finding the right elevator to the eighth floor, waiting, the really friendly staff in the waiting area as the stroke clinic shares space with the pediatric oncology team. They seem friendlier and more gentle with families than the other floor with pediatric neurology and gastroenterology. The toys in the waiting area are nicer. There are many books and a beautiful huge fish tank.

Today, there was a new neurologist on the team and she was great! She is an M.D./Ph.D. from Buenos Aires, spoke Spanish with Mia, and is eager to learn from me as they work to set up resources for families. Mia’s main pediatrician is a woman, and most of her therapists have been women, but this is only the second specialist we have seen who is a woman. She took time to get to know us, was patient when Mia wouldn’t answer her questions, gave her time to warm up, and asked really good questions. She asked me what kind of support system I have. She asked me to share resources with her as they are setting up a website to support families. She offered to write letters to support me in advocating for Mia to continue to receive occupational therapy through the school district and to get speech therapy too.

I found a sweet video of Mia at that first appointment six years ago. She was swatting at the toy horse hanging from her carseat, snapped into her stroller frame. Then and now, I watch this video clip and see that she is hitting the horse a bit more purposefully with her left hand than her right. It’s subtle but noticeable. And yet, her right hand is active too. I used to wonder what it meant, what would she be able to do with her hands.

Today, Mia read aloud for the new neurologist on the team. She ran down the hall, with no apparent gait issues. She hopped as easily on her right leg as her left. She turned pages in a book, took off her sandals, all using two hands in a very functional way. She can tie her shoes, paddle a kayak, climb trees and rock walls, swing across monkey bars, ride a bike, swim, waterski, play soccer, ice hockey, lacrosse, and piano. She is amazing and our journey has been rich with rewards and challenges.

I know a family new to this world of pediatric stroke. I know several such families in the online community of CHASA (Children’s Hemiplegia and Stroke Association). It’s a scary, bewildering journey. Love your child as if they are fine. Educate yourselves to advocate for the best care possible.

I have felt sick this week. It started as a bit of congestion Monday evening and then turned into intense fatigue Tuesday afternoon, worsened overnight as Mia needed some nighttime parenting. I did get good sleep Wednesday, night but still felt tired in my bones this morning. I felt sick again this afternoon from the heat and sun during the drive as I didn’t take the time to put on my sunglasses. I have been doing some amazing healing work with Irene Lyon to support my nervous system in healing from stress and traumas small and large, recent and distant. I sensed that my fatigue this week is a release of long held stress. And, then today, as I was trolling through my memories brought on by the heat and places on our route into Boston and through the MGH campus, I was moved to write here to process all of this, and it made sense all of a sudden. I am releasing some of that stored tension, the wonder and worry that started when I learned my two day old baby had suffered a stroke.

I felt it all today, the fear and uncertainty that made me anxious through the early days, weeks, months, and years, intense pride and connection with Mia as she showed off her many skills, compassion for my imperfect parenting of both of my children through a tough several years, and joy to have them both on this journey with me.

Since I had to take the afternoon off from work for the trip into Boston, after we finished with the appointment, Mia asked me to take her to get new sneakers before school starts next week. We found shoes she loves, blue boys’ ones, no laces please. And, I agreed because last year in Kindergarten, she learned to tie her shoes in September and had to practice all year with her lace sneakers that are now two sizes too small.

We met Zoe at home after her afternoon playdate and took her to soccer practice. Mostly now, life goes on like this with our full schedules of work and camp, soon shifting to work and school. We get help from our au pair to fit in all the activities, transportation, meal prep, and care needed to support the development of both of my girls. And, occasionally, I make time to pause, write, and share how much I appreciate the wonder of it all.

800 Days of Reading Aloud

Mia and I like to joke that Zoe is becoming a Penderwick. You’d agree with us if you heard her exclaim things like, “Mama, Jane just said she’s lost count of how many times she has read ‘A Little Princess’!” We are into year three of our Reading Streak, that is reading aloud every day and logging our books.

To get to 800 days, we’ve had to invent some new rules. Guest readers are allowed and make it possible for me, Mara, to take a break from reading and parenting every once in a while. Zoe was recently sick and spent an entire day on the couch listening to “The Penderwicks on Gardam Street.” She fell asleep in the evening before Mara had a chance to read to her. We counted that as part of our streak anyway.

Coming out of her illness, Zoe decided to write to Jeanne Birdsall because she really can’t wait until the fourth Penderwick book is published in 2015. She tells me that we’ll keep on reading the three existing Penderwick books over and over until the fourth book becomes available. I keep introducing other options, and we come back to the Penderwicks again and again. This reading streak has echoes of life and parenting, dramatic tension, resistance, repetition. Here are the letters and art. Jeanne Birdsall has seven pets which is totally fascinating to Zoe since we currently have zero pets, having lost two fish and one hermit crab to the negligence of young children and their busy mother.

IMG_5915.JPG

IMG_5912.JPG

We are definitively done with the Little House books after traversing five generations of Little House girls and women over many months of reading aloud together.

Mia has an entirely different relationship to the Penderwicks and to the reading streak in general. There was the phase in which we read “Charlotte’s Web” something like eight times in a row at Mia’s repeated request. But, then there was the series of weeks in which Mia simply asked me for addition problems in lieu of her reading time. Other nights, she’ll want to play Go Fish or Crazy Eights. In the car, on a recent drive to Ithaca, we alternated hours, one hour we’d listen to The Penderwicks at Zoe’s request, the next hour we’d have “quiet” at Mia’s request. We did recently read “Matilda” which Mia chose from a stack I brought home from the library. Much as she sometimes protests “so many words,” I do believe Mia is listening too. She and Zoe were making up sounds and rhymes today about Jeanne Birdsall and Jane Goodall.

Our recent trip to NYC was made more fun by a quest to visit the Met as we’d just read “From the Mixed Up Files of Mrs. Basil E. Frankweiler.” Zoe was thrilled to find the mummies and see the fountains and Etruscan sculptures. Mia was tired and most interested in the gift shop where we found some novel toys and crafts.

In the summer, Zoe asked me one evening, “Does Einstein really exist?” And later, “How did they take his brain without killing him?” The questions continued so I said I have a book about him, “Einstein, His Life and Universe” by Walter Isaacson. It was my mother’s. I haven’t found time to read it. So, I pull it down off of the dusty shelf, and Zoe starts paging through the 675 page volume, asking if I’ll read it to her after we finish all our “Rose” books, and lands on the epilogue. “This is the chapter that mosts interests me, ‘Einstein’s Brain and Einstein’s Mind’.” She made a plea for me to read it, “Right now!” And, of course, I did. She listened to the whole epilogue, asking more questions. As I read one passage that quotes Einstein’s fundamental creed, “The development of science and of the creative activities of the spirit requires a freedom that consists in the independence of thought from the restrictions of authoritarian and social prejudice.” Zoe remarked, “He’s really smart. I don’t know most of those words.” She lugged it upstairs and continued to study the contents, reporting that there’s a chapter on “Divorce” and “a girl named Elsa” (think Frozen as do many 7 year olds), and asking, “What’s a Red Scare?” So, then I was trying to explain Communism and Democracy. But, later when I brought a close to the usual upstairs bedtime reading before she was ready, because we’d taken time out for Einstein, she lost it and we had a bedtime tantrum. Did I mention that while I was reading the epilogue to Zoe, Mia was blowing a high-pitched whistle loudly in protest?

Our reading streak continues, and while we started with a modest goal of making it to 100 consecutive days of reading aloud, 1000 now seems startlingly within reach. As always, we welcome suggestions on titles, authors, series, and all genres that might interest two girls, ages 5 and 7.

California Bound

20140711-215810.jpg

A week from tomorrow, Zoe, Mia, and I are flying to San Francisco for fifteen nights in California. I’m making lists, trying to find things, working on packing after the girls are asleep, and some when they are awake, pouring over maps, contacting old friends, and making plans. Earlier this week, Zoe decided that she really wants to bring her American Girl doll, Sage, to California to show her cousin Alison who is getting married near the end of the trip. These cousins have bonded over American Girl dolls. I said no. I’ve been telling my girls that they are pretty lucky, getting to go to California at ages seven and five.

I first arrived in California twenty-three years ago, the summer after I graduated from college, for an internship with the United States Geological Survey (USGS). The summer before that, I spent several weeks at a geology field course in Wyoming and South Dakota. My hard work earned me this internship, and a wise professor of mine helped me contact one of his colleagues at the Menlo Park office of the USGS to see if he could use some help. He could and so it was that I got to join his field crew in Mammoth Lakes, California, working with five guys, driving a 4-wheel-drive government truck around mountain roads at night to measure crustal deformation with a two-color laser geodimeter. By day, my field crew buddies taught me to recreate – mountain biking, rock climbing, hiking, and backcountry skiing in winter. I was lucky then and in the ways that life is circular, here I go again, retracing some of my path through California and eager to share it with my girls.

Back then, I was twenty-one, fresh out of college, and keen to drive cross-country to begin my adult life. My father had died a few months earlier of a brain tumor. My mother threatened that she would drive with me if I didn’t find someone else to make the cross-country trip. So, I found Jenny on the ride board at Brown University, looking for a ride to San Francisco. I loaded my little red Honda Civic with my graduation gift mountain bike standing tall atop the car, picked up Jenny in Ohio and taught her to drive stick shift as we meandered to San Francisco. I vaguely recall dropping off Jenny and sharing a meal with the eccentric family that was hosting her in San Francisco. I had friends in Palo Alto then as I do now, different friends, but a place to stay nonetheless. I checked in to the Menlo Park office to do some paperwork and then drove back east over Tioga Pass to the East Side of the Sierras to learn my field job.

The job itself involved a lot of driving on mountainous dirt roads at night to set up retroreflectors for the laser to point at for measurements. About one week out of each month, we took the show on the road to other temporary networks we monitored throughout California. I was able to extend my summer internship through the end of the year. It was eye opening in so many ways. Perhaps the biggest was that it was a pause in my life from the achievement of school, before “real” adult pursuits. It was well-timed as I was still grieving my father’s death, and welcomed the mountains to explore and inspire.

As I got restless intellectually after some months, I applied to graduate school for a Ph.D. in geophysics, both on the East Coast and on the West Coast. I visited both of my top schools. On the East Coast, an MIT professor asked me during my interview, “Have you traveled much?” I thought I had and rattled off places I had been in the United States, and on a few family and school trips to Europe. I think he was trying to sell the travel opportunities in a field focused on studying the Earth. On the West Coast, I stood on the balcony of the beautiful redwood building that is the Institute of Geophysics and Planetary Physics, part of Scripps Institution of Oceanography, University of California, San Diego. The Pacific spoke to me. I could easily imagine spending years there. And, I did. Five to complete my Ph.D, and another year as a postdoc. Perhaps that MIT prof had planted a seed too as I traveled extensively, spending nearly a year abroad of those five years of graduate school. I spent a summer field season in Indonesia, took a sabbatical with my advisor in France, participated in research cruises in the Southern Ocean and off the coast of Baja California. And, while in La Jolla, I studied, researched and swam around the pier with friends and colleagues most days from April to October each year, as long as the water temperature was at least 64 degrees.

These are some of my stories that I want to share with my young girls on our trip. Our planned itinerary is oddly similar to my own route over the seven years that I called California home. We start with visiting friends in the Bay Area, then Yosemite, then the East Side of the Sierras, then San Diego with extended family for my niece’s wedding. Both of my girls and their three young cousins are all in the wedding.

I plan to mail our clothes for the wedding sometime this week so we don’t have to worry about keeping them safe through the mountains and driving adventures. I’m attempting to connect with friends along our route, including the lead guy on that USGS field crew who is still on the East Side, and some of my book group buddies from a book group I cofounded with other women in science seeking community way back in 1993 that is remarkably still active.

I may blog during our trip, or I may wait until we return. Meanwhile, back to packing! There’s an awful lot that needs to happen here at home and at work for me in the next week but indulging in these memories and sharing the anticipation helps me prepare too.

My Last Daycare Check

DSCN0014 IMG_3805

My last daycare check is in the mail. I reach this milestone with a mix of emotions.

In the first picture above, Zoe was visiting Mia and me in the hospital. Mia was just thirty-six hours old. It was a dozen hours before she had her first seizures which meant she had to be sent alone with medical staff by ambulance from the hospital where she was born to a bigger one across the river, with a full NICU, and the ability to diagnose her stroke.

In the second picture above, taken last week, Mia and Zoe are goofing around, far too big to be in the bike trailer, but asking me to take them for a ride for fun. Zoe is seven. Mia is nearly five.

In both pictures, their sisterhood is so present. It’s ironic to me now to see Mia sucking her left thumb and Zoe studying her right thumb. This was before, before we knew that Mia would become a lefty for sure.

It’s a leap of faith to have a child, perhaps a blind leap of faith to have a second as a single mom. I leapt twice and somehow we have all made it, not just surviving nearly five years as a family of three, but really thriving even in the face of some daunting challenges.

Last year, I actively participated in Pediatric Stroke Awareness Month, blogging daily through the month of May. That effort has had many benefits, new contacts with families and professionals interested in pediatric stroke, sharing information broadly that seems to benefit others, and most personally, helping me affirm how far Mia has come with my support. It was cathartic and healing to be able to share more details of our journey. And, we raised significant funds for Children’s Hemiplegia and Stroke Association.

This year, I considered repeating my blogging streak. I could easily have written updates on all the topics of a year ago, showing Mia as an even more competent kid, now almost five. But, I made an active choice not to blog. I am investing more this year in my own self-care. Blogging that intensively last year meant lost sleep. And, this spring, we are in a big transition. I wanted some space to feel my way through the changes.

To work full-time outside the home as a single parent requires tremendous logistical support. Zoe was in a family daycare in our neighborhood her first two-and-a-half years, but even before I was pregnant with my second child, I had visited the daycare/preschool where I would later send both girls. I loved it then and still do now. Some of the teachers have been there more than twenty years. They care for infants all the way through pre-K. Both girls started there when my maternity leave ended. Zoe was in the youngest preschool class and Mia was in the infant room. For three years, both girls went there full time. For the past two years, Mia has been in preschool there and on Monday she goes for kindergarten orientation at the bilingual school where she’ll join Zoe in the fall.

Mia has just three weeks left at this beloved school. Today, she hosted me as her special guest in her class brunch. I’ve been feeling nostalgic as the end of this era approaches. I’m putting some of that energy into making a special gift for the school and cards for the teachers.

Of course, my budget will be easier without having the expense of daycare. I look forward to seeing my bank balance when my mortgage payment exceeds my childcare expenses again. That has not been true since before I had my second child. I feel grateful to have been able to afford such excellent care, to have had the amazing continuity so that both children have had many of the same beloved teachers, and that we’ve been there long enough to feel like they are part of our family, certainly part of the village supporting me in raising these beautiful girls.

When I signed us up for two spots in this daycare, even before Mia had been born, I had no idea that she would have any special needs. And then she did, and I took a lot of time in the beginning to orient the caregivers to exactly how to handle Mia when picking her up, not to prop her in sitting but to let her lie down and find her own way there. As a toddler, she went to school wearing a splint on her unaffected left hand to give her time every day to practice with righty, modified constraint therapy. The teachers followed my suggestions for sensory play with my promise that whatever was good for Mia would be great for other children too. Mia played with shaving cream, sand, water, rice. And then, after eating snack with righty, the teachers could help her take off her splint so she could go outside to play and she could use both hands and arms to master the playground by climbing, swinging, traversing the monkey bars, and sliding.

Each year that Mia has transitioned, I have met with the new teachers to orient them to her needs. I have written up a one or two-page set of suggestions for how to best support Mia’s development. Remarkably, this year, both of Mia’s teachers have marveled at her curiosity, eagerness to participate, persistence and independence, and self-care skills that are on par or ahead of some of her peers. It’s through their eyes that I have come to see Mia as so ready to take the next step, to leap from the early childhood years into elementary school with her big sister leading the way.

And, it is nearly time for me to make that transition too, to escort Mia to kindergarten orientation, to believe that we made it, not just through the financial hurdle of getting care for two kids from birth to five while working full time, but through the developmental hurdles put in our path by Mia’s stroke.

Here are my girls in action recently, Mia on her 16″ bike, confidently making a turn, Zoe joyously swinging on the trapeze swing.

IMG_4277 IMG_4269

I will close with gratitude for making it to this transition with the love and support of many. Here’s one of Mia’s recent pieces of art, where she so clearly affirms her left-handedness.

IMG_3812

600 Days of Reading Aloud

20140518-162441.jpg

We reached another milestone today with 600 days in a row of reading aloud together.

In updating our main Reading Streak page, I noticed some patterns of interest. While we’re still in the Little House books, having finished our third reading of the Laura books and now into the Rose books for the third time, and closing in on Zoe’s goal of reading about all five generations of Little House girls and women, we’ve branched out a bit too.

Both girls love American Girl books and we’ve read all the Molly books, both Saige books, both Mia books, and three Josefina books. We also had a nonfiction run with Jane Goodall’s wonderful, “My Life with the Chimpanzees” and “The Chimpanzees I Love” and a couple of her picture books too. I’m including select picture books on our list that are notable. We read lots of picture books that I don’t note. Mia also discovered “The Puppy Place” series at the library, which I don’t love but the kids do.

The book trail pictured here is Mia’s work on a day when she napped for thirty minutes and then entertained herself late into the evening by paving a path of books. I like to imagine her walking through all these books as she was building her path. I only discovered the finished product when I was ready for bed myself.

Mia requested “Charlotte’s Web” again within the past 100 days. It’s her perennial favorite, the one book for which she can sustain attention more than any other chapter book. Often, while I read, Zoe lies or sits next to me and listens intently while Mia plays nearby. But, I know that Mia is listening too as she’ll comment on the characters and plot in surprising ways.

The girls and I are proud to have made it to 600. We manage to fit in reading time twice a day most days and once a day even on the busiest days.

 

Shifting Acture, Shifting Emotions

I was just interviewed by Suzanne Kronisch for her “What’s YOUR Feldenkrais Story?” series.

One of the things that came up in our discussion was this essay I wrote in 2005 to my classmates when I was in a four-year Feldenkrais training program. I’m sharing it here so Suzanne can link to it and to give more context for some of my Feldenkrais musings on this blog.

Date: Tue, 25 Jan 2005
To: <My NY Feldenkrais Professional Training classmates>
Subject: shifting acture, shifting emotions

Hi,

Sunday morning of our last segment, David began by saying that he was going to teach a rarely taught lesson. It began something like this. Sit on the floor. Bring your left foot to standing, extend your right leg in front of you. Lean on your right arm behind you. Place your left hand on your left knee. Exhale and slowly push out your lower abdomen. Inhale and slowly pull in your lower abdomen….

I don’t want to repeat the lesson here as you were all there doing it with me. I do want to share my experience of doing the lesson, and the experiences I had immediately afterwards and continue to have now, more than a week after this lesson.

Sometimes I am fully present for an ATM, and this was one of those times. As I heard David say “rarely taught lesson” and then go into a story about where he remembered it being taught, I said to myself, I’m gong to do this lesson really carefully, really attentively. Of course, I’d love to do every lesson with these qualities but I’m not there, sometimes I am, sometimes I am not. This one particular lesson, I was there.

During the lesson I stayed in a tiny range. The position is not the most comfortable for me, but it is a whole lot more comfortable than it used to be. Even at the beginning of the lesson I could feel how my hip flexors were engaged. My lower leg was not quite standing vertically, but more at a 45 degree angle with the floor. Other people had their lower leg planted almost at 90 degrees to the floor which seemed closer to the instructions. I closed my eyes and told myself again to find my own ease, my own starting place. I kept coming back to this.

Part way through the lesson I began to feel the tonus in the leg that was long change for me. I could let it rest more fully on the floor. That was one of the first shifts that I noticed. I also noticed that for me to stay in the tiny range that was fruitful for me required just allowing a tiny movement in my hips and pelvis, really tiny, maybe not even visible, but I could feel it.

The lesson continued and I continued with the same quality of attention to myself. When I stood up, I was rewarded tremendously. My feet were making an entirely new pressure pattern on the floor, balanced more along the line between the heel and the ball of my foot towards the inner border of my feet. My legs felt as if they were completely underneath me. My knees felt free. And my low back and hips and pelvis felt remarkably free.

I happily wore this new pattern all day Sunday. I didn’t pay as close attention to any lesson after that, I had gotten my weekend’s fill. That evening, I got curious, I posed a problem to myself to try to find my way from my brand new pattern back to my old familiar pattern. I was afraid to do this, afraid I might lose this newfound freedom, but I was also curious to see just how much I could sense in the difference between what I was doing. And, I wanted to have a choice. I know from past experience that if I can find the way there and the way back, I can choose, just as Moshe taught, just as we’re taught, to stop any place along the way.

My sensations were there to guide me. Because standing was where I noticed the difference most clearly, I did my experiments in standing. At first, I used the new sensations as they were prominent – the pressure pattern of my feet on the floor, my sense that my legs had turned slightly inward and were somehow more aligned to support me, my sense that my low back was long. Then, I started to make small adjustments, thinking of changing the pressure pattern of my feet, thinking of rotating my legs outward a tiny bit as the outer borders of my feet accommodated more pressure, realizing this made my lower back arch more. I found my old pattern eventually. It’s a pretty strong magnet.

It was harder for me to find my way back to the new pattern from the old. The thing that was most dramatic was how far I had to shift my pelvis backwards to get there. That became the key, the place from where I could initiate the entire shift in pattern. It’s not a small change in terms of physical distance. My pelvis actually shifts several inches backwards to get to the new pattern and that’s accompanied by my low back lengthening, actually my entire spine lengthening and my neck becomes free. My legs rotate inward and under me, and my feet are there to help me easily balance.

I showed a few of you the old and new pattern on Monday. You told me that I grew in the new pattern. I do, at least an inch I’d guess. The shift is so amazing to me that now that I’m home, I’ve been playing a game in the mirror where I stand and look at myself in the mirror with something behind me that I can see to monitor my height. I shift from the old to the new pattern again and again almost to convince myself that I can, and I see with my own eyes that I grow in the new pattern. I feel all the openness that comes with this new pattern. Then I allow myself to shrink again and my chest collapses as my low back takes on too much work and my knees nearly lock and my ankles become stiff and my neck feels strained.

Monday, the last day of our segment, began with Marie-Lauren teaching a fun lesson that I approached with too much exuberance with my newfound freedom. The position of kneeling with one foot standing, and then doing all kinds of side bending, led me to do too much. I didn’t feel it at the time, just on the bus that evening, I felt my outside of my left leg as if I had strained a muscle. My low back and hips still felt free, but I knew I had overdone it. Tuesday, in my yoga class, I was careful to just work on allowing that muscle to let go again, and it did.

Thursday, I went again to yoga, and my teacher who is very tuned in to energy took one look at me and told me that my energy had shifted. She knows about my Feldenkrais training, so I told her about my breakthrough. I showed her the old and the new pattern. Again, she exclaimed how much my energy hadshifted.

I can’t see or sense energy in the same way that she can, at least not yet. But, I have noticed that my mood has been better than usual, my energy level has verged on manic over the past week, and my overall emotional tone has felt less anxious, more calm.

I’ll attempt to describe a little how I understand this. In my old pattern, it’s almost as if my neutral is very far forward of what’s possible for our human structure. For me this seems to fit with my alpha tendencies to often be first, to act quickly, to plow ahead, not always aware of all that’s around me. It’s almost a starting place that doesn’t allow so much reversibility because I’m already committed to going forward.

In my new pattern, I can sit back with comfort and ease, I can shift easily forward or backward or left or right. I can take in my whole environment and choose when and how to respond. I feel as if I have more time. I feel less tightly wound. I feel as if I need to get to know myself all over again, which is exciting and fun, and a little odd. Every little thing I do, from walking, yoga class, shoveling snow, even doing dishes and brushing my teeth, each is an opportunity to attend to my pattern, to catch myself if I fall back into the old pattern, to delight in new sensations and new options afforded by my new pattern.

Best,
Mara

Case Study: Ponytails and Folding Socks

Zoe is a great inspiration to Mia. Just this morning, Zoe put her hair in pigtails, and before I knew it, Mia had too. Zoe is seven. Mia will be four years and nine months old tomorrow. Zoe wasn’t even aware of the idea of doing her own ponytail or pigtails until she was in kindergarten last year and saw a classmate doing it. Mia has the good fortune of watching Zoe do everything day after day so she gets the idea that she can too.

20140318-210659.jpg20140318-210712.jpg

I don’t always see it coming with these new challenges that Mia defines for herself. A couple of weeks ago at bedtime, I noticed that Mia was brushing her hair a ton with leave-in-conditioner and getting frustrated with the tangles. I thought her frustration was related to hairbrushing. It wasn’t until the next morning, when I was sitting on the couch reading to them and Mia was attempting a ponytail and getting frustrated and then going into the extensive brushing routine again that I realized her quest to give herself a ponytail.

Mia is very dominantly left handed and she can do a lot with her right hand, especially in bimanual (two-handed) activities, but learning a new skill behind her head seemed pretty daunting to me as the observer.

So, here’s what I observed in an e-mail I sent to her occupational therapist. “Mia has embarked on teaching herself to do a ponytail on her own hair. She has many of the concepts and steps but not all so is getting frustrated. I am looking for ideas and ways to support her. She puts the elastic on her left hand, uses both hands to gather the hair into her right hand to hold it there. She uses her teeth to get the elastic from her left wrist onto her left hand, and then manages to get it around the bunch of hair somehow but gets frustrated and stuck after that. She then claims her hair is tangled and embarks on a lot of spraying of leave-in-conditioner and brushing with her left hand which migrates her part further to the right. Can you help Mia work on this, break it down, etc?”

Then, I went online and searched for “one-handed ponytail” and posted to ask other families with stroke survivors for their experience with kids learning to do ponytails. One replied that her daughter had learned at age eight. Another told me how ambitious Mia is to be attempting this so young.

I thought about putting out elastics of various size and texture to let Mia experiment. But, life is busy, and I haven’t done much to support her, and still she’s learning, very much on her own initiative and with the ongoing model of Zoe.

At Mia’s weekly occupational therapy, that first week of March, they talked about how frustration comes with learning something challenging. They experimented with doing things in front of Mia so she could see and feel to get the concepts more solid. The therapist even offered that Mia could try on her hair. Instead, they made a bunch of yarn to use for practice. And, in that way, Mia learned the concept of twisting and doubling over the elastic to loop it through a second time.

I’ve seen Mia successfully make a ponytail in her hair once. Even doubled over, the elastic was too loose and fell out after about half an hour. I had no idea she could do pigtails, and since I didn’t see her doing them, I don’t know exactly how she managed, except that she must have reached over around her head to do the major work with lefty.

Since I don’t have good video of her working on this new skill, I thought I’d share another recent clip of a different self-defined fine-motor task. I got the girls new socks and Mia set herself the task of folding them all into balls. Enjoy and look to see how she uses her two hands differently. And, if you listen, you’ll hear Zoe in the background, alternately vying for attention and cheering Mia on as she folds socks. That’s our normal. Zoe said just this morning, “Mia’s learning early with the pigtails and ponytails!” Mia’s persistence, determination and inner drive are all quite remarkable, even more so because she’s not yet five.

Update from March 21, 2014

I managed to capture a video of Mia making a pigtail. Notice how she gives each of her hands different jobs at every stage of the process. And, you can see her moment of pride as she accomplishes what she set out to do. Enjoy!